She took her writings and diary entries documenting her daughter’s disability and turns it into both art and advocacy

Tatiana Ortiz-Rubio learned to question everything. Her mother had a doctorate in philosophy and taught at the National Autonomous University of Mexico, and Ortiz-Rubio was around for the ...

From Action to Awareness with Two Rare Disease Parents

The Foundation for Angelman Syndrome Therapeutics (FAST) has helped redefine the role of advocacy groups. Founded and led by ...
HerFamily.ie

James lives with Angelman syndrome

Chatting to Brendan O'Connor, Colin Farrell (49) credited his eldest son James for helping him get sober. James (22) lives with Angelman syndrome, a genetic condition that affects development, speech, ...
Her.ie

Colin Farrell praises his son James for helping him get sober

Chatting to Brendan O'Connor, Colin Farrell (49) credited his eldest son James for helping him get sober. James (22) lives ...
Irish Mirror

Colin Farrell on how son James helped him get sober: 'He's an amazing young man'

The Hollywood star opened up about his son James, who has Angelman Syndrome, revealing how he became his 'higher power' during addiction treatment and describing him as 'one of the happiest human bein ...
EVOKE

Colin Farrell says his son James helped him get sober

Hollywood A-lister Colin Farrell says he gets more out of his son James than the other way round in a moving interview where ...
RSVP Live

Colin Farrell explains how son James helped him get sober: 'He's an amazing young man'

Colin Farrell has made a rare comment about his 22 year old son James, who has Angelman Syndrome, explaining that he was one ...

Ionis Pharmaceuticals, Inc. (IONS) Presents at Oppenheimer 36th Annual Healthcare Life Sciences Conference Transcript

Oppenheimer 36th Annual Healthcare Life Sciences Conference February 26, 2026 12:00 PM ESTCompany ParticipantsBrett ...

Ionis Pharmaceuticals, Inc. (IONS) Q4 2025 Earnings Call Transcript

Ionis Pharmaceuticals, Inc. ( IONS) Q4 2025 Earnings Call February 25, 2026 8:30 AM EST Good morning, and welcome to Ionis' Fourth Quarter and Full Year 2025 Financial Results Conference Call. As a ...
FierceBiotech

Ionis scraps early candidate for Alzheimer's in people with Down syndrome

Ionis Pharmaceuticals has pulled the plug on an early investigational treatment for Alzheimer’s disease in people with Down syndrome, marking another setback for a group of patients who are both at ...
People

Scientist Made ‘Havana Syndrome’ Machine to Prove the Disorder Isn't Caused by a Secret Spy Weapon. Then the Machine Made Him Sick

A scientist attempted to simulate one of the theorized causes of the mysterious illness and ended up with symptoms of Havana Syndrome Joaquin Hernandez/Xinhua via Getty A Norwegian scientist who was ...
KCTV News

Meet Maddie, the Children’s Mercy patient battling Angelman syndrome who exudes positivity

KANSAS CITY, Mo. (KCTV) - Four-year-old Maddie loves cheese and fruit snack gummies, being right in the middle of the action, and playing with her twin sister, Kellie, and older brother, Colin. When ...