A group of questionnaires called PROfuture can meaningfully measure a variety of symptoms of SMA that impact patients, a study reported.

Columnist Connie Chandler shares how traveling with SMA isn't a solo journey, but an opportunity to deepen bonds with people ...

Guest writer Joanna Buoniconti says that new treatments have granted her many things she's grateful for, including the ...

Columnist Sherry Toh discovers that an app's guys can treat her like any other woman — which makes for a lot of potential bad ...

Joanna Buoniconti is a writer and editor based in western Massachusetts. She was diagnosed with SMA type 2 in 2000 at 10 ...

Evrysdi treatment is safe and effective at improving or stabilizing motor and lung function in adults with SMA for up to 2 ...

Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...

Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...

A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...

Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.

Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, interim results show.