Researchers’ Perspectives on the Role of Study Partners in Dementia …
WEBThe role of study partner, critical to the dementia research process, can be complex, laden with hope and expectations, and can add to the study partner’s responsibilities as a caregiver.
Researchers' perspectives on the role of study partners in dementia ...
WEBStudy partners are usually family members or friends - often the patient's informal caregiver - who are knowledgeable about and usually accompany the participant to study visits. This study examines researchers' perspectives on the role of study partners in dementia research.
Study Partners Perform Essential Tasks in Dementia Research …
WEBStudy partners have a critical role in dementia research, and there is increasing interest in understanding who are these individuals and how they might impact the research process. Typically, a study partner is a family member or close friend who may also be the participant’s primary caregiver.
Retention of Study Partners in Longitudinal Studies of Alzheimer ...
WEBStudy partners are required for all participants at Alzheimer Disease Research Centers (ADRCs). Study partners’ attitudes and beliefs may contribute to missed visits and negatively impact retention of participants in longitudinal AD studies.
Participating in Alzheimer's Disease and Related Dementias Research
WEBThe study partner goes with the participant to research appointments and can provide insights about how their memory, thinking, and behavior changes over time. Learn more about being a study partner in Alzheimer’s research.
The importance of study partners in Alzheimer’s clinical trials: An ...
WEBDec 25, 2023 · Study partners are essential to the success of AD trials (Largent et al., 2018). Although participants are not required to be related to their study partners, research has found that those with spouses as study partners were more likely to qualify for trials compared to those with adult children as their study partners (Grill et al., 2012).
Study partners perform essential tasks in dementia research …
WEBMay 13, 2016 · Content analysis demonstrates that study partners perform a range of tasks—often within the context of being a caregiver—that enable cognitively impaired individuals to participate in dementia research.
Researchers' Perspectives on the Role of Study Partners in Dementia …
WEBJan 14, 2019 · This study examined researchers’ perspectives on the role of study partners in dementia research. Semi-structured individual interviews were conducted with 17 researchers (principal investigators, study coordinators, and research nurses) at two academic research sites.
Study Partners: Essential Collaborators in Discovering Treatments for ...
WEBOct 21, 2019 · “Study partners: essential collaborators…” article. The article addresses ways to facilitate study partner participation in clinical trials, such as by removing logistical barriers, offering payment, and providing paid, protected time off for study visits.
Study partner types and prediction of cognitive performance ...
WEBNov 27, 2019 · In AD dementia trials, study partners ensure informed consent, assist with protocol compliance, and are the source of information for a variety of trial outcome measures [ 2 ].